Thursday, June 11, 2009

Good heart, bad parking

We took Emily in for another follow-up visit and heart catherization/biopsy. The procedure went very well, and the results were excellent. She had another 0 score for rejection and her blood tests (C4D and PRA) were both negative. The echo looked good, as did the pressures in the heart.

She is very busy finishing up the school year and preparing for final exams. She does not seem to have the stamina to do a full day of normal activities, but she has been working really hard at preparing for her exams in 3 courses. Although it is a relief to be worrying about normal things like exams, it is frustrating for her to be doing it with low energy and working around things like heart biopsies...

Our big problem with the visit to Children's this week was that someone broke into our car overnight in the parking garage. They stole our GPS (bye, Charles) and also Emily's backpack with her notebooks and calculators for school in it. Grrrr. How low is that? Stealing things from people whose kids are sick enough to be overnight at Childrens...

With the help of security and Harvard Univ police, and Boston Police, we recovered her notebooks. We called the glass guys who were able to repair the smashed window the same day, so we were still able to get home that night after the biopsy. Jeff ran out and bought new calculators, so Emily was tired but good to go back to school on Wednesday.

We are now on a monthly clinic schedule for the summer. We are really looking forward to seeing friends and family in the next couple months. Emily still has two courses to finish up over the summer, but it will be nice to have a new schedule and some more down time.

2 comments:

Bob Singer said...

You people who live in the Boston area can appreciate this. Deb had stopped off to drop off our suitcase at the car while I went with Emily to the biopsy. Deb called while Emily was getting prepped to say the car had been broken into and the glass was broken. There were several nurses around and they started suggesting that we could call a service to have the glass repaired the same day--I had been thinking about plastic and duct tape for the long drive home. As they wheeled her into the surgery they were remembering the phone number and three of them in unison sang "1-800-45-GIANT."

Marianne said...

Hi Deb and Bob- I only today learned of all that you have gone through and just read through every single posting. It is clear that Emily gets her strength from both of you. You are all an inspiration. Emily looks great in the photos and I hope that many more action shots lie ahead. I will be thinking of all of you and following her amazing progress. Sending lots of good wishes!(and of course Kathie would appear with food and to make beds! What a friend.)