We have made it through four weeks post-surgery. We've been at Webster, MA, entertained by the ice fishermen, movies, books, and the treadmill. We made trips to the hospital on Tuesday and Thursday. Tuesday was a heart biopsy. The procedure went ok but evidently while in the surgical suite and medicated on morphine and versed, Emily got a little weepy. No big deal, versed dis-inhibits emotions, but the anesthesiologist, who prefers unconscious patients, added more versed. When Emily came back to us she was very dopey and said that she remembered the whole procedure and it went well. Fifteen minutes later she couldn't remember the procedure. Dr. Blume came in and talked to her and said that she wouldn't remember any of this and she'd come back later. Emily gave Dr. Blume some presents she'd been saving, but fifteen minutes later she couldn't remember giving her the presents and was very mad that she was so dopey she kept forgetting stuff. That's the way most of the day went. Dr. Blume came back and told us the results of the catherization (normal, but slightly increased pressures) and what to expect over the next few months. Emily conversed with her, but later in the day forgot the conversation. When we got back to Webster Emily was very angry about losing the whole day to the drugs. The doctors and nurses all agreed to back off the versed in the future.
Thursday was a clinic day. We got there after 7 AM, went to Phlebotomy for a blood draw, took the morning meds, got an echocardiogram (good heart function), and met with Dr. Blume. She quickly realized that Emily had no recollection of the discussion on Tuesday so she went over the same information. Dr. Blume would say, "even though you will start to feel good you have to restrict your behavior..." Emily would start to reply and Dr. Blume would say, "Now you are going to say_____ because that's what you said on Tuesday and we've already had this discussion." Emily laughed and said, "you're right!" Emily met with another specialist and Deb and I took a walk, only to be called back because Emily had thrown up. She felt lousy from the meds. Her tutor showed up and somehow Emily had the strength to have almost two hours of school. Then we went back to Webster.
This weekend has been fun. Deb's sister Susan and Emily's cousin Samantha are visiting. Sammy and Emily are very close. The picture shows them enjoying Uncle Tom and Aunt Nancy's "edible arrangements" fruit cluster. The bare sticks all contained chocolate covered strawberries, which were the preferred fruit.
The coming week includes two more trips to the hospital, which also include two more long sessions with the tutor. Thanks again everybody for your support, generosity, and concern.