The tricky part of treatment post-transplant is to set the doses of the anti-rejection meds. THis involves trial and error of dosing and measuring serum levels daily. Emily's surgical recovery has been very smooth. Getting the meds straightened out is taking some work. She is on a lot of meds that will be temporary, some she will be on for the rest of her life. It is very important that the level of the primary antirejection drugs stays at a certain level. Unfortunately, Tachro seems to make Emily's blood pressure go up and gives her headaches and nausea. So we are working at trying to keep food in her and keep her stomach settled while she is taking these drugs and yesterday her blood levels were way too high, making her feel sick.
The other challenge is that there is a nasty GI bug going through the hospital. The staff is being very careful, but by my estimate about half of the nurses were out sick last night. We are being very cautious, staying in our isolated room and not touching anything from the outside world.
The transplant team is meeting this morning. They will review her meds and discharge plan. We'll update the blog later. Rounds on Mondays are late so we won't hear until late morning.