It is amazing that after a major major event like a heart transplant, it is the little stuff that gets you.
Em's new heart has not missed a beat. Her chest incision is not terribly painful and looks great (thanks Dr. Emani).
But what hurts is the IV lines, the headaches, the nausea from all the meds. I guess these are not small things in the sense that pain is pain. The other thing is that most of these side effects are related to the immuno-suppression and anti-rejection drugs. That part of the treatment is at least as difficult as the surgery, and actually lasts a life time.
OTHER THOUGHTS (from a noisy room at 5 am)
I realized yesterday as we settled into yet another new room, this feels a bit like camping in the midst of high technology. Each day we have an adventure, and many nights we have to set up camp in a new spot. We have to find food, worry about where we will sleep, ration clean clothes, and have a tiny little space to live in. We hoard plastic bags and scraps of paper. That all seem silly when you look out the window and we are in downtown Boston.
Sometimes it feels like this is a strange horror movie where there are patients and medical staff running around doing thier jobs. But in the background, visible with only special 3-d glasses, are zombie-like parents. You see them in the elevators carrying food, in AuBonPain in pajamas and slippers, leaning agains walls using cell phones. They are invisible to the visitors and hospital staff....ok, maybe not a good movie plot.....