So they are getting us ready to be discharged. We had med training today. We prepared a 3-page spreadsheet of meds and doses. We collected up some of the meds from a special pharmacy, and ordered some from CVS. We met with a metabolic specialist to review the supplements she is on.
Emily had a so-so day. She still has little appetite and her digestive system is still upset. However, it seems that we are balancing out the meds better, and are zeroing in on a dose for the cardiac meds. There were no headaches today, and her blood pressure was better, too.
Tomorrow is a biopsy, and hopefully discharge on Thursday.
I did laundry. I know you are all proud.