So here's another one. Bob, my beloved geek of a husband, starts roaming around the room with a strip of toilet paper, testing the breeze, shortly after we moved into this special isolation room on Thursday. He determines that the airflow in the room is negative (sucking air in from the hall), when for an immunosuppressed patient, it should be positive, with the air blowing out when you open the door to keep the germs in the hall. OK, so it seems wrong, so he asks about it and is told, "that is the way it always is." Not a good answer to give Bob. So, long story, but this gets elevated to the level of a hospital policy issue. And, the idiots, believe it or not, on Friday, came and reversed the air flow WHILE WE WERE IN THE ROOM. So the dust in the ducts from 3 years of sick, isolated patients was blown in on us. Another scene for SCRUBS. We have not yet come down with any detectable diseases.
Dr. Blume, who now I think of as Wonder Woman, breezes in here yesterday morning with a box of Dunkin Donuts. The woman is a treasure beyond measure. I only wish someday I could get her to sit still long enough to have a cup of coffee an chat. So we asked her if the air handling issue got up to her, and she lauighed and said, "Are you kidding, it was almost the only thing I did all day yesterday." And she said what the take home lesson is, is that when she is pushing us to leave this place we should listen. She is more worried about Emily getting sick here in this loony bin, than sending her out of here with us.
So at first I had a panic attack (mild) when it was suggested we should be discharged soon (Thursday or Friday or Wednesday or Monday, depending on who you talk to) . Now I understand why Dr. Blume wants us out of here. All we are doing now is adjusting meds, and we can do that out patient. There is a GI bug going around the hospital. The staff are back on precautions with Emily, and wear gloves and gowns in the room (like our photos from the ICU). Bob and I are wearing gloves outside the room.
The problem is that Emily is still adjusting to the meds. Her stomach did not take to the meds this morning and her blood pressure is up and a headache is back. These are normal hiccups in trying to adjust meds post-transplant, but very unpleasant none-the-less. At least the air is blowing in the right direction now. It also helps block out the hall noise.